Shamrocks Irish Nook Cerebral Palsy Awareness Month

THANK YOU to Shamrocks Irish Nook, Clare and her family!Shamrocks.png

In celebration of National Cerebral Palsy Awareness, Shamrocks Irish Nook highlighted Clare’s story and donated $2 to River Valley Riders for every "Country Clare Burger-of the-Month" sold during the month of March! 

Shamrocks Irish Nook, 995 7th St W, St Paul, MN

Especially now, please help us thank them by showing your support!  Try the Homer Simpson Burger of the Month (or the Bart Simpson if you're not as hungry). A delicous burger with cheddar and bacon served on a donut!

To-go orders with curbside pick-up available. Call 651-228-9925 to order.  11am-9pm.

 

CLARE’S STORYClarePhoto_1.jpg
By Chad, Susan and Clare

Our Clare Bear entered this world on April 21, 2014. Her delivery was traumatic, and she lost oxygen to the brain. Clare was 6lbs of perfection and we were excited to begin our journey as a family of 3! It would take 2 ½ years for us to know that on that very same day we had entered the world of Cerebral Palsy (CP).

Clare was struggling to hit developmental milestones like roll, sit, crawl, talk and walk. Everyone would offer words of encouragement and tell us “she’s just doing things at her own pace”, but we knew it was something more. With all the hurdles Clare was experiencing, we began our research. When Clare was 2 ½ it was confirmed by an MRI that there was brain damage in Clare’s cerebellum, and we received our CP diagnosis.

CP affects muscle tone, movement and motor skills. It hinders the body's ability to move in a coordinated and purposeful way. It can affect other body functions that involve motor skills and muscles such as breathing, eating, talking, bladder and bowel control. CP is often caused by brain damage that occurs before or during a baby's birth. Brain damage can also lead to other issues with vision, hearing, and cognitive delays. CP is a non-progressive disorder that in most cases can be effectively managed with therapy and continued care.

As first-time parents, we went into this chapter without knowing the world of special needs. It’s the biggest challenge we’ve had to face, but with the greatest amount of joy. Everything we’ve experienced has come in steps. Every step makes us a little stronger so that the next hurdle will be a little more bearable.

Today, Clare struggles with global developmental delays, unilateral hearing loss, hypotonia (CP), and is non-verbal. Along with so many other CP warriors, our Clare Bear works hard toward developmental milestones like running, writing, engagement and talking. As Clare gets older her journey gets tougher because her developmental delays and restricted communication are having a greater impact on her quality of life. Clare is in Physical, Occupational and Speech Therapy multiple times a week and in the upcoming months she will receive her 3rd umbilical cord stem cell transplant.

As parents, we are supposed to teach our children how to one day live independently and be self-sufficient in this world. While there is uncertainty that this will be in Clare’s future, we will never give up fighting for this.

National Cerebral Palsy Awareness Day is meant to bring awareness to the 764,000+ people that have CP in the US. Clare might have a tougher road than others, but you would never know by the happiness and positivity she shows. She amazes us every day with her will to fight for the quality of life that every child deserves.

Thank you for celebrating all the CP Warriors with us!
Chad, Susan and Clare